trouble: XKCD: Late? It's barely 3 a.m.! (3 a.m.)trouble ([personal profile] trouble) wrote,
@ 2010-10-06 03:23 am UTC
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Entry tags:don: all about don, don: don = evil (but he hides it), don: don health updates, don: don updates, personal: all about me
Crossposts:http://troubleinchina.livejournal.com/575635.html
Don Update:

First, Don has been sick, still or again or something, we're not really sure. He headed off to the throat doctor this morning about his frozen vocal cord, then came home and cancelled his other doctor's appointment and slept till almost 7. He's a bit better now.


The throat doctor says that there's a surgery they can do that inserts a small plastic piece in the throat that... I don't know. Something that affects the way the air travels and should make life a bit easier for Don in terms of speaking and being heard, and thank goodness for that. Don's researching the surgery to determine if he wants to be put on the waiting list. Waiting list is three to four months. The surgery requires him to be knocked out but not actually under general anesthesia, as apparently at some points he needs to be able to vocalize so they can tell if the plastic is positioned properly.



So, the wheelchair is still out on unspecified "repairs" for an unspecified amount of time.

People often equate this to being without a car for that period of time. I'm a bit iffy on this analogy. I would go more with "Imagine if you, who normally leaves your house quite often, was suddenly locked in. For weeks." I can't remember if we're on three weeks or four now.

This is a huge freaking deal in our lives. Don does a lot of things that require the wheelchair and being able to leave the apartment. Just to rattle off some things that are really a problem right now, he usually takes out the garbage and the recycling, takes down and gathers up the laundry, runs errands, buys groceries, and all that jazz, not to mention we like to socialise with people on a regular basis, or just go out for tea at the nice wheelchair-accessible tea shop up the road. This may seem like simple inconvenience to someone outside of our relationship, but to us this is a huge problem. I spent a big chunk of today just taking care of all the household tasks that have been piling up because I'm not home very much and when I am home I'm exhausted. And I still haven't bought us actual food yet.

But imagine someone with a job. Someone with a typical Haligonian service-industry job, for example: working in a hotel, or at a call center. Or maybe working as a receptionist at a busy office. Now imagine them being unable to go into work for the foreseeable future because they can't leave their home because the damned wheelchair repair place has the wheelchair and won't tell you when it will be back. I'd love that phone conversation. "Oh, hi, yes, I'm sorry, I can't come in for another week. No, I have no idea how long it will be." Imagine trying to make ends meet this month if we were counting on Don having a paycheque. It just wouldn't work.

I note, for the record, that there's no reason for Medi-Chair not to believe that Don has a job.

They haven't even called us back with an estimate on how long it will take to repair it.



In other wheelchair stuff, Don's looking at getting a manual chair for travel and for the multiple times a year apparently we will be without his electric one. Apparently once that's all sorted, they'll have me come in and get the height of the handles adjusted so I can push it without hurting myself bending over! I'm very excited! Plus, I like the idea of us being able to travel without the big electric chair.


Me Update:


I spent today home, as I said, cleaning many things. Got out the garbage and the recycling, did three loads of laundry, did too-few loads of dishes, and generally tried to get the house wrangled and back under control so I can go back to neglecting it for another month or something while doing thesis work. Or so's the plan.


Now I am drinking tea, and Don is reminding me that we're well after 3 a.m. here in Halifax so I should be an adult and go to bed. Sleep is like ice cream, tempting but a bit scary.


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rainbow: text: I find your lack of buttons disturbing (lack of buttons is disturbing)


[personal profile] rainbow
2010-10-06 06:59 am UTC (link)
they equate being housebound with having to make do without a car? in a _city_, where there's lots of other options for getting around? wow with the stupid :(

i was housebound from may last year to this past may. i feel a huge urge to hurl a cluebat at the people who are trivialising it to you! not to mention that not being able to get around the *house* is also an issue!

the manual chair for backup sounds like a great idea given the house repair companies there :(

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jackandahat: (Knitting Addict)


[personal profile] jackandahat
2010-10-06 08:25 am UTC (link)
"I note, for the record, that there's no reason for Medi-Chair not to believe that Don has a job."

But disabled people don't have jobs, silly. (I would seriously believe that's their logic, that he couldn't possibly be doing that much, so.)

My analogy last time someone started on this kind of thing was someone taking your shoes. Sure, you can get out of bed, maybe even make a cup of tea and some toast. But suddenly that supermarket "just round the corner" might as well be in China. And depending on things, just getting around the house itself might be an issue.

Good luck with all the things!

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lilacsigil: 12 Apostles rocks, text "Rock On" (12 Apostles)


[personal profile] lilacsigil
2010-10-06 08:30 am UTC (link)
I would only equate not having a wheelchair with not having a car if the person missing the chair can get around the house okay, and if you live somewhere like I do - no public transport, no shops or jobs or services within walking distance, one mostly-unavailable taxi that covers three towns. And most people have never lived in really rural areas.

Also, what the hell, four weeks? That's disgraceful. I hope the manual chair works well as a backup and alternative.

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lea_hazel: The outlook is somewhat dismal (Feel: Crash and Burn)


[personal profile] lea_hazel
2010-10-06 08:30 am UTC (link)
If it's like being without a car, does that mean they take it for granted that they must provide a rental chair for the duration of the repairs, as part of the repair costs?

I can't imagine being housebound for three weeks for no good reason. Don must be unbelievably restless.

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ironed_orchid: pin up girl reading kant (Default, intellectual hottie (green))


[personal profile] ironed_orchid
2010-10-06 10:01 am UTC (link)
The being without a chair sounds deeply frustrating.

And as someone who has never had a car and gets around town just fine, that analogy is deeply floored.

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forthwritten: stained glass spiral (spiral)


[personal profile] forthwritten
2010-10-06 10:20 am UTC (link)
Three or four weeks? That's shameful.

The car analogy really fails. I don't have a car, but I manage very well with my bike, public transport and walking. I am by no means housebound, and it's rather offensive to suggest that the situations are comparable.

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meloukhia: Leeloo from 'The Fifth Element,' holding up a Multipass and smiling. 'Multipass' is bannered across the top of the image (Multipass)


[personal profile] meloukhia
2010-10-06 12:19 pm UTC (link)
Ok, ok, I confess, it was me with the car analogy (someone else might have done it too) but what I was talking about was how when you bring a car in to the shop and it's kept there for a while, they a.) tell you how long they are going to keep it and b.) provide you with another one, and I was wondering how it was that you get this with a car, which is not necessarily critical to getting around (although it is for some people--not all of us live in cities/towns, have access to public transit, etc., like, I have friends in the woods who would be trapped at home without a car), but not with a wheelchair, which is clearly a critical mobility aid.

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trouble: Sketch of Hermoine from Harry Potter with "Bookworms will rule the world (after we finish the background reading)" on it (Bookworms)


[personal profile] trouble
2010-10-06 02:35 pm UTC (link)
Oh gosh, no, that analogy gets used all the time, and most people don't do the "if the car went away, you'd get a loaner", they just think about it as not having a car: inconvenient, but not a huge problem. You know it's a problem. Cuz I whine at you constantly.

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meloukhia: Buffy the Vampire Slayer, her left side toward the camera. She is looking over her shoulder.  (Buffy)


[personal profile] meloukhia
2010-10-06 02:44 pm UTC (link)
Ah! Ok, yeah, because when I drew the analogy I wasn't in the car=wheelchair! mode, I was more thinking about the fucked up social implications embedded in the fact that giving up a car for even a few hours is considered, like, a huge burden that requires an immediate loaner, while losing a wheelchair for weeks is considered no biggie. There's an interesting parallel going on there with...the idea that disabled people don't really need to go out in public, right? I mean, what could they possibly have to do.

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laughingrat: A detail of leaping rats from an original movie poster for the first film of Nosferatu (Leaping Rats)


[personal profile] laughingrat
2010-10-06 03:24 pm UTC (link)
God, that's really inexcusable about the chair company. I'm sorry you guys are having to worry about this.

This may seem like simple inconvenience to someone outside of our relationship, but to us this is a huge problem.

No, it definitely sounds like a huge problem. :(

The surgery sounds interesting. Hope it works out, whichever he chooses.

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sami: (arise, gaming gamer who games)


[personal profile] sami
2010-10-06 06:05 pm UTC (link)
I think I have a rough idea, actually. I pretty much can't leave the house alone at the moment, and it's been that way for a while. In my case, the disability is mental, but I suspect I have a general imperssion of how miserable it is.

I can't believe how much those people suck, and I really wonder if they even know how to fix them anyway - Don's seems to break down more than, well, anything should.

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willow: Raspberry on black background. Text: Original Unfiltered Willow (Willow:Unfiltered)

OT


[personal profile] willow
2010-10-06 11:04 pm UTC (link)
Back when leaving the house was harder than it is now - I considered an outdoor service animal (my cat's my indoor service animal - encouraging me to get in the kitchen and make food for everyone). Anyway, I thought it'd help me feel safe and like I wasn't 'alone' to deal with any mental blips.

Maybe at some point in the future a helpful canine or primate might be the way to go. Can't remember if you're allergic.

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jesse_the_k: Extreme closeup of dark red blood cells (Blood makes noise)


[personal profile] jesse_the_k
2010-10-07 03:08 am UTC (link)
re: the right-height handle. The magic word is "adult stroller," which do come in larger sizes than "transport chairs."

re: the wheelchair people, repeat after me: DIAF DIAF DIAF DIAF!

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