trouble: Sketch of Hermoine from Harry Potter with "Bookworms will rule the world (after we finish the background reading)" on it (Default)
Did you know that the folks behind Glee were explicitly invited to a best practices panel on disability at a major industry conference in Hollywood this past summer and turned them down?

Because, I guess, actually working with people with disabilities in the industry to talk about representation and stuff is too much work for someone getting awards for diversity while publicly mocking disability rights advocates and activists who have talked about the problems with Glee and representations of disability.

I will have more details about this later.
trouble: Monique from Sinfest, wearing glasses and looking serious "Yow! Sophisticated lady! droppin' da knowledge!" (smart chicks rule)
I'm hoping if I type this up I'll get it out of my head so I can concentrate on my actual work.

I haven't had time for several years now to read romance novels that aren't written by Moira Rogers (and haven't even had time for that in months), so I don't really know where the major tropes are. Are romance novels, chick lit, RomComs, etc, still doing that thing where "And then she took off her glasses and he could see her eyes and realised that she was beautiful"? Or have they stopped?

This came to mind because I was thinking about a conversation I had back in the fall where I was explaining the social model of disability by talking about glasses as assistive tech and vision problems being a disability but not really. Everyone in the room was wearing glasses, and there was a certain amount of "Hmmmm...." when I made that connection: Glasses are assistive tech that is generally accepted by society. I've never heard anyone describe getting glasses as a tragedy since I was a young child. Getting glasses is routine, and you'll see glasses everywhere. Glasses are totally assistive tech that are no longer flagged as such, and being near- or far-sighted isn't really considered a disability in the "Western World" anymore. (Eroding corneas, on the other hand...)

At the same time, though, media & pop culture still uses glasses as "code" - either for This Is Serious Work, or This Person Is A Nerd/Geek (and a particular type at that) or a scientist/doctor, or a Srs Scholar. This is true whether the person uses glasses all the time, or if they just use them for certain things. On Leverage, for example, when Elliot puts on his glasses he suddenly becomes totally sexy and I'd totally hit that because I'm shallow it's usually an indication that his persona for the episode is Egghead/Nerd or Expert on something. I think Neal does something similar in White Collar when he's doing close-up nerdy-type work on his forgeries. [I've just texted my White Collar expert who I'm certain will be able to tell me if Neal is in any scenes wearing glasses, what episodes it happens in, what the time-stamp is, and what is going on in the scene, while reminding me of everything else he was wearing and where ... Yup, text just came back with a yes: "Episode where he pretends to be a doctor... just before he gets drugged." Thank you, [personal profile] neekabe] I also clearly remember Elle Woods putting on her Serious Glasses and getting into her Serious Clothes for when she wants to be taken seriously as a lawyer. Glasses = Smart!

What brings this back to Glasses As Assistive Tech is that glasses are very normalized to people watching the shows, and yet glasses aren't all the common as just a Thing The Character Wears in the show. I know why this is - glasses cause light-reflections, glasses make it harder to read someone's expression on the screen, glasses can be dangerous in fight scenes, if they have lenses they can get scratched up and cause more problems, and if you're not someone who wears glasses all the time I'm betting they're distracting.

But novels - whether chick lit or romance novels or whatever - don't have this problem. You can give every character in a romance novel glasses if you want, and it doesn't really matter. And yet, when I was reading romance novels & chick lits all the time, I can only remember one heroine who wore them, and she went through the whole "Oh, but no one will find me pretty! Men don't make passes at girls who wear glasses!" (And, despite her glasses being a huge thing in this novel [1], the cover art didn't show her with them. Not that this is surprising, but still.)

So what does this have to do with anything? Well, glasses are assistive tech that is very normalized, and yet doesn't appear very often in our media. When it does appear in our media, it's often a code for something. This person is Smart. This person is Studious. This person in Playing A Role. This person is Elliot and his glasses make him really really hot omg. And if we can't see this incredibly common type of assistive tech in our media being used as just a Thing That People Wear, it's no wonder we so rarely see people using assistive tech in our media just because Some People Are Blind or Some People Uses Arm Crutches or whatever.

Okay, hopefully now I'll be able to concentrate. Geeze.

(Halifax Weather Update: The foghorns are out in full force, and I can't see the building across the street.)

[1] BTW: I could tell the author actually wore glasses. Instead of being completely debilitated and helpless without her glasses, she was helpless when she walked inside from the cold, because her glasses fogged up. I'm ridiculously near-sighted without my glasses, and I can still get around and do stuff in the bathroom and the shower and the locker room and even the swimming pool without my glasses. It's walking in from the Canadian winter that I become completely helpless.
trouble: Sketch of Hermoine from Harry Potter with "Bookworms will rule the world (after we finish the background reading)" on it (Default)
Don and I went to see this great romantic comedy a few summers ago. IMDB tells me we saw it in 2008. It's called Easy Virtue, and it's one of those delightful romps where a young upper-class English boy brings home his wild American wife who is older than him, basically to upset his parents. It's set in 1929 and has all those great things that movies have when they're set in that time period - jazz music, flapper dresses, British manners, cigarette smoking as sexy and cool, etc, etc etc.

The take-away message was that if you really love someone with Cancer, you'll kill them if they have to undergo too much chemotherapy.

As this was around the same time as we confirmed Don's cancer diagnosis, you can imagine that this kinda ruined the awesome movie-going experience for us.

When people tell stories about families like mine - the dude in the wheelchair with omg!cancer, the crazy lady who hides under her desk so nothing can get her - they tend to tell three stories: "Bitter Cripple Who Needs To Be Schooled By Abled-Folks About How Their Life Isn't Over Yet", "Overcoming Adversity: A Very Special Lesson", and "It Sucked, And Then He Died". The heroes of these stories are almost always the Able-Bodied (and it is very much a "broken body" trope - narratives of madness are different). There never seems to be fictional narratives about the world-famous scientist who just happens to have neuro-muscular dystrophy, or the renowned US historian with the award-winning books who just happens to use a ventilator, or the actor who, after a disabling injury, refuses to become a director and just happens to land a role in a major television series. If these people showed up in fiction, their disability would be the story. Because that's the story that is told about disability.

Whose life is it anyway?

So I come back to story after movie after very special episode where the person with the disability, the cancer, the catastrophic illness, gets themselves out of everyone's way by killing themselves or begging others to do it for them. I remember every narrative where disability = evil, where disability = faked, where disability = a lesson, a punishment, a blessing in disguise, a test, a momentary difficulty that is healed when the bitterness goes away, because fictional disability never just is.

This continual fictional narrative of disability as trope is what makes me distrustful of disability in fiction. If I want to watch a show that appeals to me and includes people with disabilities treated realistically, I have to go back to Joe Dawson in Highlander. If I want to watch a fun movie romp, I'm back at Sneakers. If I want to have a long conversation about assistive tech, I'm at X-Men and Star Trek: The Next Generation. If I want to watch something that looks even vaguely like our lives, I'm at Joan of Arcadia. If I want to see a show where someone has some power, a love life, and just happens to have a disability, I'm somewhere in Season 2 of The West Wing.

I don't want to play Disability Cliché Bingo every time I try and engage with pop culture. I do not want to watch a medical drama because we have enough medical drama, and with three types of narcotic painkillers in the flat I'm not fond of the addiction narrative. I don't want to watch a show where the creators and show runners cannot type "wheelchair dancer" into YouTube and see what comes up. I cannot stand the idea of watching a show where a secondary character is disabled specifically to punish the main characters. I do not have an interest in football's glories.

Tell me stories about the people with disabilities I know: The ones who work hard every year to ensure an internationally renowned con is accessible to people with disabilities, the one who co-founded a successful social networking site, the ones graduating from university this month, starting it next year, struggling through grad school without enough support, parenting their children, advocating for their rights, organizing support in Chicago, running role-playing games, managing businesses, founding a successful feminist website, writing beautiful poetry, publishing academic papers, doing their rounds at the hospital, planning disability-focused conferences, planning tech-focused conferences, cooking dinner, making documentary films, getting through today, planning tomorrow, arguing with their parents, their children, their spouses, their friends, writing blog posts, drinking tea.

We are so much more than this, so much more than tropes, clichés, or tragedies.

January 2013

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